Vacation? Heyyo


I went on a brief vacation. Not to anywhere, per se, but from something.

Due to some mix-ups with prescriptions and shipping I got stuck without my meds for a couple days. I know I should be upset, even a little scared (because my meds are protecting me from The Relapses).

I’m just mainly happy. This is what I’ve been asking for since I started on Copaxone a year ago (pretty much exactly a year) because Copaxone sucks. I’ve just been wanting a couple days where I don’t have to worry about injecting, or about needles and sharps containers and do I have alcohol swabs? Is it safe to use Purell instead? Can I use a tissue instead of a cotton swab? A water bottle instead of an ice pack? Clearly I’ve gotten less scrupulous in my injecting.

There is literally nothing worse than the moment every night when I realize that I have to do my injection. There is nothing more annoying than the fact that it’s not already in my consciousness. Maybe if I woke up every day already knowing, already remembering, it wouldn’t be so awful. Or maybe it’s good that I don’t spend all day dreading it.

When I get my MS tattoo (which won’t be until at least October), it’s going to be a set of commemorative arrows. The arrows are going to be

a) going from left leg to right

b) from right leg to left arm

c) from left arm to right arm

d) from right arm to right hip

e) from right hip to left hip

f) and then back to left leg

My mom pointed out that maybe someday I won’t be on Copaxone and the arrows won’t be “useful” anymore. They’re not there to be useful. I am not an instruction manual for my medications. What I mean by it is that for me, it was really hard to start injecting. I spent the first four days crying for half an hour before I even injected (and then, being inexperienced and badly taught, crying for a while about hitting muscle) (if you’re just starting out on Copaxone, you really don’t want to hit the muscle).

They are there to say I am Brave. I spent the first 18 years of my life passing out and having seizures (convulsions? terminology? it means the same thing, @parents) every time I needed a medical procedure involving needles. Now I inject myself every day. I am Brave.

It’s been a nice vacation. The white box on my porch made me half relieved, half terrified all over again.

One thought on “Vacation? Heyyo

  1. Randomly stumbled onto here. Reading the lines “I spent the first 18 years of my life passing out and having seizures (convulsions? terminology? it means the same thing, @parents) every time I needed a medical procedure involving needles. Now I inject myself every day. I am Brave.” gave me a serious flashback of middle school health class. Went from a conversation on needles to a conversation on “WHY DOES THE PHONE NOT WORK IN HERE WHAT THE HELL GET THE NURSE”

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